Interesting Links

Most web sites have a page of links to other sites and we are no exception. Here is a listing of sites that we find interesting and hope that you do too.

Families of SMA

(From the Families of SMA web site)
Braden in ChairSpinal muscular atrophy (SMA), the number one genetic killer of children under the age of two, is an often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing.

WHO IS AFFECTED

SMA is one of the most prevalent genetic disorders.

Families of SMA funds and directs the leading SMA research programs to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $50 million in research and been involved in funding half of all the ongoing novel drug programs for SMA.

Our vision is a world where Spinal Muscular Atrophy is treatable and curable.

Questions? Drop a note to Sue at: Sue@SueSedu.com